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Wednesday, October 10, 2012

Acencephaly and a dear friend

A good friend of mine was recently told that her unborn daughter will not survive long, if at all, out side of the womb. Her daughter has a neurological defect called Anencephaly. 3 weeks ago she found out, through an elective ultrasound that she was having a girl. At her 20 week ultrasound just this week she was given the devastating news.

My heart is broken. My friend has suffered so much loss already in her life. The loss of both of her parents before even reaching adulthood herself, and now this. There are no words of comfort, no actions that can be taken to help her through this. Thankfully Emilee and Will have great friends who love them dearly, and who already share that love with their daughter.

There is no cure, there is no direct cause. Anencephaly just happens. Most often babies are born stillborn, some live for minutes, some for hours, rarely for days, and even more rarely (only 1 case that I've heard about so far) one little girl lived for 3 months.

Here is the blog my friend has started for her beautiful baby girl, Leila Grace. http://babyleilagrace.blogspot.com/

Please pray for Emilee, Will, their sons, and their precious daughter.

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